Important

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Based on a very extreme new diagnosis I've received that not even most doctors know about I need to know. And I may not spell this right but does anybody here know about Ehlers Danlos syndrome? The symbol is a Zebra. If anybody knows anyone with this who has techniques to help keep anything from dislocating or sublexing or ways to help control the pain besides all the drugs please tell me. I'm not social enough to really join support groups without feeling pathetic for being this far messed up so any help is appreciated. Or at least not feeling alone with this other then people in my family since it's genetic

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