On their visit to the doctor, the stitches on her head were removed. She wanted to scream that time because it was indeed painful, but the pain was tolerable. The doctor told her that she already got a lot of hair that time, after removing the stitches, the doctor told her to look at the mirror.
She did not like what she saw. It was her first time to see her reflection and she felt unpretty that time. The shape of her head is unusual. Her face still has the violet patch due to the swollen right brain, but the doctor said it would eventually gone.
She was also asked about her rehabilitation, she said it was going well. Then he made her grip his hand with her right and left. He said she is getting stronger. He said that she is progressing well. Then he told her she would never go back to 100% like before, and that deflated her.
After her visit to the neurosurgeon, they also visited her neurologist. She was in her wheelchair that time and couldn’t stand yet.
“How is my moya-moya girl? How are you, Maricar?” Her doctor asked. She is beaming with glee when he called her by her real name.
“I am okay. I am getting better.” Mica said.
“Good, let’s see.” Then he checked how was she progressing. He also asked about her rehabilitation session. He suggested that she should use her brain most of the time. He told her to read or to start her on-line teaching at home. On her rehabilitation, she said everything was going well and before they left the clinic, the doctor told them that she should be walking when she comes back.
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Her rehabilitation continued. She was not only standing, but learning how to walk. A few steps could make her tired, that is why they only made few steps and then made her rest. She also did some stretching after they made their activity for the day.
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Few weeks more and she can already walk, but still with assistance. Her mother borrowed a four-legged crane from her grandmother and she used that to help her walk around. They also borrowed the wheel-chair with potty to start her’potty training’ again.
It sounds funny, but she felt that she was like a baby. At first,she was wearing a diaper for 3 months, from the hospital until she went home. Then she learned how to walk: learning to stand up and walking with a guide and walking using a crane. Then she was starting her potty training. Before she goes to sleep, she needs to go to her potty and pee in there and dump in there in the morning. It was really comfortable for her to use her potty, because wearing diapers makes someone feel uneasy and it was uncomfortable. It also makes your skin rash at times.
She was starting to eat by herself. She only used her right hand for the spoon and couldn’t hold the fork with her left. She could hold it but couldn’t use it.
“Are you going to use it to prick someone?” Her father jestingly asked her.
“Maybe.” She replied.
“You need to use your left hand, too.” Her mother told her.
“But it is difficult.” She replied to her mother.
Her PT started to teach her to climb up the stairs for her to fully realize her goal: to finally go to the toilet.
“Just remember this one, up with the good, down with the bad, all right?” Her PT told her. She needs to step up with strong side which is her right foot and step down with her weak side, her left. She is really nervous. Her parents were there for support. Her mother told her that once she could enter the bathroom, she could finally take a bath. She hadn’t taken a bath for 3 months!
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Through it All
SpiritualShe had a very rare disease. It is listed as one of the rarest disease according to Office of Rare Disease (ORD) of National Institute of Health. See how she survived it and what are the realization that she had after that. See how she was able t...
