Introduction

207 5 1
                                    

Hi! I'm Eli, (she/them), and before I get into the story I have one quick thing to say about this book.

I'm pretty sure anyone who has watched Cartoon Therapy is aware of the character Kai, who has a disease called Ehlers-Danlos Syndrome (or EDS).

I do not have EDS nor do I know anybody who has EDS, but I really wanted to include Kai in this story. So I did my research (quite a lot of it) so I could have a better understanding of how Ehlers-Danlos Syndrome affects those who have it. If I misrepresent EDS in any way, (which is the last thing I want to do), please don't hesitate to correct me. I won't be offended by being told I got something wrong.

Now that that's been said, I hope you like my story!





[Resources Used]

"Pediatric Ehlers-Danlos Syndrome"

https://www.childrens.com/specialties-services/conditions/ehler-danlos-syndrome

"Ehlers-Danlos Syndrome (EDS)"

https://www.cincinnatichildrens.org/health/e/eds

"Ehlers-Danlos Syndrome"

https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptions-causes/syc-20362125

"Pain Management in the Ehlers-Danlos Syndromes (for non-experts)"

https://www.ehlers-danlos.com/2017-eds-classification-non-experts/pain-management-ehlers-danlos-syndromes/#:~:text=Management%20can%20focus%20on%20treating,as%20well%20as%20behavioral%20adaptation.

"Helpful EDA Gadgets- Address Pain"

https://ohtwist.com/eds-resources/helpful-gadgets

"Diagnosis Criteria"

https://www.youtube.com/watch?v=UB6p59HIZ0U&feature=emb_rel_pause

Hearts Crossing [A Remile Story]Where stories live. Discover now